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This morning, I went to an "EDI Roundtable" event on the subject of neurodiversity and, allegedly, how we make the university a more neuroinclusive place.

The event was in a very new lecture theatre in one of the colleges. It was (a) incredibly steeply raked, so that the top of the theatre felt absolutely vertiginous; (b) weirdly lit, with fairly bright ceiling lights and windows at the top of the walls, meaning that the level where the speakers were was dimmer than the space above the top of the screen; and (c) horrendously echoey. The chairs were also really uncomfortable, there wasn't enough legroom even for a shortarse like me, and the foldout desk things were so close to the seats that mine was actually touching my stomach while I was sitting with my back against the backrest of the chair. And I am a very average size 16-18ish. Rarely have I been in a room that was that much of a sensory nightmare.

Of the four solo speakers, one (an academic colleague of mine) was neurodivergent. The others were: a Professor of Autism Research (not bad, apart from making me feel uncomfortably like a research subject and not a person); a GP (ok); a political philosopher who appeared to know nothing about neurodivergence and care less, opined that he didn't like the term "neurodivergent" because it implied a "neurotypical" and he thought everyone should just do as they would be done by and it would all be fine, and made a stupid joke about rejection sensitive dysphoria ("that's why I don't submit to peer reviewed journals any more") which made me want to throw things. All three neurotypical speakers came across very much as if they were addressing a default neurotypical audience, rather than a neurodiverse audience. And then there was a panel discussion with three neurodivergent people (two students and a student support worker), all of whom seemed incredibly ill at ease and at least two of whose microphones were not picking up their voices well.

I do think that the cause of improving neuroinclusion would have been better served by giving space to more neurodivergent voices. And the two-hour event used up all of today's spoons.
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Last Friday was a working Friday, but we went out in the evening, had dinner at Wagamama (where either they have significantly changed the pad thai recipe, or someone in the kitchen didn't know what they were doing, as it contained considerably more chilli than I was expecting) and then went to see John Finnemore performing live at the Old Fire Station (he seems to be doing a tiny tour, with one member of the Souvenir Programme cast each time, reading about 45 minutes of sketches, then doing one of the Double Acts in full and ending with Since You Asked Me. Not your usual comedy gig, but extremely funny.)

Yesterday I went swimmming (briefly) and added belt loops to a pair of trousers I don't much like the fit of. To be honest, the belt loops don't help much (the front rise is just too high) but they will stop me worrying the trousers might fall down completely. I only broke two needles doing it...

Today I made a start on sewing the shirt I'd cut out before Christmas, and watched an online panel discussion about comfort reads.

And tomorrow is Monday of week 1 and my first committee of the term, oh joy.
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In the last week, I have:

- been to the cinema (Paddington in Peru, clearly Not As Good As Paddington 2 but very enjoyable nonetheless)

- been for a walk (4.8 miles on a bright chilly day)

- been swimming, twice (first time since September, but we are trying hard to get back into it, and succeeded in not talking ourselves out of it yesterday because the air temperature was barely above freezing, which was absolutely the right decision because it was brilliant. And we have agreed a standing swimming date at 11am on Saturdays.)

- finished knitting a cardigan

- moved two of the belt loops on a pair of trousers I finished last month because I hadn't got the placement quite right, and also added belt loops to the softshell trousers I made a couple of years ago which are the perfect trousers for winter swimming tips except that the fabric was too heavy for the elastic so they tended to fall down. And now they won't, and that was worth the slightly fiddly sewing in deeply awkward fabric, and if I can only manage two hours of sewing in a day rather than a really long sewing session, so what? Very few of my me-made clothes are anywhere near wearing out, so sewing slowly is probably a good thing.

If I can keep swimming every Saturday (or even most Saturdays), and get in a couple of hours of sewing every weekend, that will already be a big improvement on most of last year. And I want to use my Fridays off for some tiny adventures, starting small but just trying to get my confidence about going places and doing things up again, because otherwise I'm just going to spend the rest of my life sitting at home feeling like something is missing and resenting T for having his own life and not wanting to do the same things I want to do. The thing I really want to do is to get on a train and go to the seaside and walk along a beach and eat fish and chips looking out over the water, and maybe even swim, but I think I probably need to start smaller; go somewhere different for a walk, maybe, or go to another town and potter round shops and cafes, or find an interesting exhibition to visit. Suggestions welcome, though I don't necessarily promise to take them.
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I didn't actually mean to stop posting here, I just...kept not getting round to it. And here I am three months later. Ooops.

I suspect that was mostly because term was busy and exhausting. The UCU marking and assessment boycott has been the crisis we really didn't need to round off the first "normal" academic year after three years of pandemic disruption and it has all been a bit much, really.

I haven't been swimming nearly enough, largely due to the A34 having been closed for roadworks almost every weekend since mid-May, meaning that the 20-minute drive to the river was taking an hour each way. I have been swimming regularly in the chlorine tank but that's just depressing, especially the utterly grim state of the changing rooms.

I haven't been walking much, either, even though I finally cracked and bought a DSLR and it does take great photos.

I am (obviously) quite depressed again but I'm not really sure what to do about that.

I had last week off work. We went to visit my parents (father: possibly a bit more mobile than last time but sleepy and confused and mildly cantankerous; mother: just tired) and were planning to have a day at the seaside, but the weather wasn't great and while you'd think that they're much closer to the sea than we are, it actually takes a good hour each way to get to the nearest coast, and that's just Great Yarmouth, and that felt like too much effort, especially as I'd managed to give myself food poisoning by eating bad hummus, missing the last day before my break (including saying farewell to my brilliant office manager, and the faculty garden party), and was still feeling a bit wobbly and occasionally nauseous at that point.

I am very tired. Which might also be the lingering effects of the food poisoning, or just life.
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I am reading one of the (many) books about autism I've acquired in the last couple of years, trying to work out whether I can see myself in them enough to justify identiying myself as autistic instead of just weird and a bit useless. (Answer; yes, definitely.)

Picking this one up, I wondered vaguely if "books about autism" has now become a special interest. And then I remembered how, at the age of seven or eight, I was so obsessed with reading Doctor Spock's Book of Baby and Child Care (trying to work out what I was meant to be like) that my mother ended up hiding it from me. And then later, when I started to work out that I wasn't straight, I tried to find myself in queer fiction (of which not much was available in the local library, and none of it was terribly helpful, because I had no idea I was looking for ace rep and even if I had done, I don't think there was a lot of it about in the 80s).

Later on, I mostly tried to learn how to interpret and interact with other people from books, but I've always been trying to find myself there, too.

Weekending

Jan. 8th, 2023 06:53 pm
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I have mostly spent the weekend sitting on my bed drinking tea and reading a book about rivers. Which seems like the perfect way to spend a soggy January weekend when you have a cold. I did print out a sewing pattern but decided I couldn't summon up the energy to stick the pieces together, let alone to actually consider doing anything with it. Plus, I was enjoying reading about rivers.

I did venture out yesterday to meet my swimming friends for coffee, as none of us is feeling up to swimming right now. We went to the cafe in Florence Park, which I'm told is very good, although at 3:45 on a Saturday they had a very limited range of cake and only enough chai left for one person when two of us would have liked it. On the other hand, the barista greeted us by saying that she didn't usually get three people at once with such excellent hair and telling us we looked like we should be in a punk band, which clearly we were all delighted by.
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I have been back at work a week, and it has been OK. I started with a couple of shorter days and have been trying to stick to finishing at 5, and I don't feel too tired. I'm only working Monday and Tuesday next week, and then I'll be on leave until 4 January. Everyone seems to be very glad to have me back, though actually, things appear to have gone along pretty well without me.

I had to write a brief biography for a leadership course I'll be doing next year (leadership? Me? I don't know what they can be thinking) and ended with "I identify as queer, neurodivergent and a feminist and this fundamentally shapes my approach to work and life". Which felt...brave, but good.

I have also spent much of the week with an epic book hangover from finishing Victoria Goddard's At the Feet of the Sun, which is, basically, the epic ace romance of my dreams. And then I looked at the fic, and got annoyed that so many people seemed to think that the canon ace romance should develop into the characters having sex, and I got annoyed and ended up writing my own fic, in which they do not have sex. And I may have just outed myself as someone who prefers balance sheets to sex.
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People who take/have taken HRT for menopause symptoms, can I ask how you've found it? My GP suggested that menopause might be exacerbating my existing mental health problems and contributing to the current kablooeyness, and asked me to think about whether I'd like to try HRT. My first reaction was no, because I've never wanted to go on HRT - I had a horrible time on hormonal contraception and worry it would actually just make my mental health worse, and also I was so delighted to be over the whole thing that I hate the idea of having to take medication for something I welcomed so much. (Plus some complicated gender feels about HRT making me more woman and less genderless goblin, which I should probably just try to get over because I can't change my endocrine system by willpower alone.)

But...what if the tiredness and brain fog aren't just because I've been under continual extreme stress at work for three years, and have had various non-work stresses as well? What if it is to do with menopause and HRT would help? (I was ranting the other week about medicalisation of normal life stages and capitalism not letting people just have less energy at some life stages than others, but however true that is it doesn't change the fact that capitalism is the ocean I'm swimming in.)

Anyway. What is your experience of HRT? In particular, has anyone had good experiences with HRT after bad experiences with hormonal contraception?
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This is how today went:

8:05 arrive at office. Unpack bag, switch on computer, make tea.
8:20 sit at desk with tea. Read emails.
8:45 decide I should probably stop ignoring the emails telling me my password is about to expire. Spend ten minutes trying to think of a new password that conforms to the rules but that I can also (a) remember and (b) type.
9:00 multiple apps pop up notifications saying I need to log in again. Try new password. New password refuses to work. Give up and go to buy coffee.
9:15 get back with coffee. Drink coffee. Log in to multiple apps with new password which now works.
9:30 ring someone for brief chat about potential temp.
9:45 go to say hello to team. Spend 15 minutes talking to new office manager about various things.
10:10 stop on the way back from saying hello to team to ask most vulnerable colleague if she wants people to wear masks in in-person meeting. Spend 15 minutes catching up about various things.
10:30 regular senior staff meeting.
11:30 go and make more tea
11:40 sit down and start working through email. Remember I need to read papers for meeting at 2. Skim-read papers while also keeping an eye on inbox.
12:45 go and have lunch. Manage brief walk in parks.
1:45 get back from lunch. Answer teams message.
2:00 committee meeting.
3:15 committee meeting ends, teams call with another person who was in the meeting because we had arranged to talk afterwards.
3:30 look at email.
3:45 realise I need a wee. Decide to make tea while I'm up.
4:00 get back to desk with tea, contemplate actual work that needs to be done. Also contemplate state of utter exhaustion which I have already reached.
4:10 person turns up wanting a quick word about something. By the time they go, tea is cold.
4:30 drink cold tea. Have several parallel teams message conversations about various things while trying to write an email.
4:45 send email. Start reviewing documents which have to be submitted by tomorrow.
5:15 submit documents. Write and send another email. Start reading papers for meeting tomorrow morning.
5:30 person sticks head round door to say goodbye and catch up quickly on stuff that's happened today.
5:35 go back to meeting papers.
6:10 finish skim reading 153 pages of meeting papers for 10am tomorrow. Realise I'm not going to catch 6:20 bus. Spend 20 minutes on email.
6:30 stagger out of door and in direction of bus stop.

And this is not actually an atypical day...
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I took Friday off so we could drive to Norfolk, where we were looking after my dad while my mother went to my uncle's funeral. This was slightly nerve-wracking but actually went fine; food and cups of tea were produced at appropriate intervals, we managed to find the cheeseboard for the second lunch and coped without it for the first, and my dad makes enough noise negotiating the stairs that I woke up when he got up and was able to leap out of bed, relieve him of the cup he was trying to carry (he is using two sticks now, rather than one, so carrying things doesn't really work) and make him a cup of tea before he started trying to do it. It was really nice to spend the time with him, actually, and we probably talked more than we have done in years.

My mother got back yesterday afternoon, and shortly afterwards heard from one of her brothers that his pre-flight covid test had come back positive, so we just have to hope that they weren't in contact enough for her to have picked it up. (One of my cousins whose dad's funeral it was is also just getting over covid, but my mother gave her a wide berth.)

And then today we drove back, and by the time we got home it was mid-afternoon on Sunday and I didn't feel like I'd had a weekend at all. I did manage to spend an hour piecing together fabric for the jacket I'm making out of two pairs of old trousers and a top that didn't really work out, and then went for a swim, which has helped a bit. And at least next week is a short week (I'm probably taking Thursday off, and definitely taking Friday.)
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The Lake District was lovely. We did a fair amount of walking, including a couple of reasonably strenuous if not terribly long (5-6 mile) walks and a guided walk with alpacas, I swam in Loweswater and Buttermere, read books and admired the views.

Being at home feels odd, like I've forgotten how to live here in the space of a week. (Being on holiday properly for the first time in two and a half years also felt very odd to start with, so I'm sure it'll pass.)

I think I do feel much less tired, and properly relaxed for the first time in ages.

Also, I have come to the conclusion that if I want to avoid burning out again, I need two things: first, I need to stop trying to be responsible for everything and start making my staff take some of that on, and secondly, I need to feel like I have someone who has my back can help me work through problems. The first one is doable, for values of doable which involve consciously changing the way I manage and getting people who have got quite comfortable with the way things have been to accept that; the second is more difficult, when I currently have a part-time interim line manager who I only see once a month (and missed this month's, as it was the week before last when I was off sick), and my new head of department, as far as I can tell, basically thinks I am the person who solves the problems. (I assume that at some point I will have a new permanent line manager, but I'm not sure they've even advertised the post yet, so I have no idea when that might be.)
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As of this evening, I am officially On Leave, and we are off to the Lake District tomorrow morning for a week. I really hope that will be enough to get some of my energy back.

I thought I'd try working from home today to try to tidy up some loose ends before going away. By 9am I was fairly sure this hadn't been a great idea. By 10am I knew that I would not be able to make it through a full day, so I shuffled meetings around to allow me to catch up with the key people before logging off just before 1pm and spending the afternoon resting.

I suppose if I don't feel rested by the time I get back I will need to get my GP to sign me off...

Weekending

Feb. 20th, 2022 08:12 pm
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I spent yesterday alternating dozing and reading. This seemed to do me enough good that by today I felt moderately human again and managed to find enough energy to finish the trousers I started last weekend.

A white person with short grey hair and glasses stands in a rainy garden holding a large green and white umbrella. They're wearing a navy t-shirt with DISCO printed on it in white and dark denim trousers with large pockets and a button fly.

(I'm very pleased with these trousers. I used the Lander Pants pattern I used to make a pair of yellow cords over the Christmas break, but with the legs narrowed following the pattern for the 100 Acts of Sewing Pants No 1, and the result may be my perfect trousers.)

I am still tired enough that I'm really not looking forward to having to get up at 5:45 tomorrow morning, and am quite worried about my ability to make it through five days of work. (I really prefer working in the office - I struggle to focus on work at home - but commuting just feels exhausting right now.) I am looking at booking a week off as soon as I can (and maybe even booking a Real Holiday, possibly in the Lake District, and have started looking at cottages and the potential for not-too-strenuous walks for people who are badly out of practice, especially with hills), but we've still got three weeks of term left so realistically that's not going to be for another month yet.
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Thanks to Storm Eunice, the rather dilapidated remainder of the corrugated plastic roof over the end bit of our back garden between the end of the garage block and next door's fence is no more. It managed to take several bricks and the rather substantial timber the guttering was attached to with it, but by some miracle didn't actually hit someone's car that was parked out the back. Getting something done with the now entirely roofless space will cost a bit of money, but not nearly as much as paying to fix a car that has had a solid beam dropped on its roof, or even contesting a claim for same.

Other than that we appear to have got off lightly. We had a brief power failure in the morning (only about a minute, but long enough to knock the router out so it took me ten minutes to get back online and into my meeting), but all our fences are still standing and the only other damage I could see from the windows was one wheelie bin on its side. I was very glad that we live in a mid-terrace house which was sideways on to the wind, though.

The forecast for the weekend is still looking pretty windy, even if nothing like today, so we're erring on the side of caution and planning not to swim. Which is a shame, though on the other hand, it means I can just stay in bed all weekend if I want...
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I am currently feeling exactly as exhausted as I did a few weeks ago, just before collapsing with what tests suggested wasn't actually covid.

I also have the same on and off headaches, brain fog and general malaise. Last lateral flow test was this morning, and was negative (though I have had more contact with people this week than I have done since pre-Omicron this week - half an hour or so unmasked at a coffee morning to remember the former colleague who was killed last week, an hour and a half unmasked in an in-person meeting yesterday, and someone I had a masked meeting with yesterday morning's spouse has just tested positive).

Do I have covid this time? Do I have something else? Am I actually just suffering from Proper Burnout and am back at collapse point after rallying briefly due to sick leave? (I have been managing to stick to 40-hour-ish weeks, though this is awful for my ability to actually keep on top of my inbox and probably doesn't really work well with my tendency to struggle to actually get down to anything major until all of my meetings are out of the way.)

Meanwhile I am stockpiling lateral flow tests in anticipation of the government deciding to stop providing them, and have been being vocal in meetings about thinking that it would be a jolly good idea if the university strongly encouraged people not to come to work with covid, or indeed any kind of infectious illnesses, even if self-isolation is no longer a legal requirement. (I got quite irate with the chair of the health measures advisory group who said we couldn't tell people they had to stay at home, and pointed out that actually, if we employ them, we bloody well can.)

I am working from home tomorrow, and find myself idly thinking that maybe if Storm Eunice knocks out our wifi so I can't make any of my meetings it would be quite nice, really.
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I am currently in the grip of a desperate and hopeless craving for Wagamama. Miso-glazed cod ramen with a side of bang bang cauliflower, for preference, but honestly I'd settle for anything on the menu. It's nearly two years since I last ate there, and actually I can count the number of times I've eaten decent East Asian food (as opposed to bog-standard Chinese takeaway) in that time on the fingers of one hand*.

Sadly, I'm not about to go and eat in a crowded noodle bar, and they don't deliver outside the ring road, so I am not going to be able to satisfy this craving any time soon, and somehow home-cooked alternatives aren't the same.

I've almost forgotten what it was like to be able to plan holidays and actually see people in person, and I don't feel like I miss it that much, but my goodness I miss Wagamama.


*Two sushi deliveries from the person locally who does prebooked deliveries on a Saturday evening most weeks; one takeaway sushi in the rain in swimming friend L's garden; one takeaway sushi in town with friends from Glasgow who were visiting last summer; one lunch from Itsu I treated myself to last term** when similar cravings got too much.

**Maybe on one of my office days next week I could do that again, if I have a day with enough time between meetings to walk into town and back as well as eating.

Weekending

Jan. 30th, 2022 08:03 pm
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I woke up yesterday feeling utterly depressed, and dragged myself out for a walk in the hope that being outside would reset my brain a bit.

Two pale green hazel catkins glowing in sunshine against a sky of slate-blue storm clouds.

The light was amazing, and being outside definitely helped, but it turned out to be a bit more walking than I was really up to; the last mile home was a struggle and I spent the afternoon slumped on the sofa watching Encanto (which is utterly charming) and then attempting the 2012 film of Les Misérables (which I gave up after an hour, because if you're going to film a musical, you really need to cast people who can actually sing, and then have them sing, rather than just kind of muttering their way through it, and one Good Tune in an hour is not enough to keep me watching a saga of misery and deprivation) while reading Sandman.

Today I did the Big Garden Birdwatch, during which, as is traditional, I saw far fewer birds than I would normally do in any given hour. And then I decided to invest my remaining spoons for the day on tackling two weeks' worth of ironing (I never used to iron things, but it turns out that me-made clothes in 100% cotton need it), despite the fact that I have been wearing the same dungarees and cardigan on seven of the last nine days (and on one of the other two I didn't actually get out of pyjamas) before returning to the sofa and watching Eurovision: The Story of Fire Saga on [personal profile] nineveh_uk's recommendation.

I am tired, and sad that it is Sunday evening already. I'm going to work from home tomorrow because I don't want to try to go to the office and find out that the journey has wiped me out before I even start (and I'm not particularly keen to spend more time on the bus to minimise walking, given the end of the mask mandate last week), but I still feel pretty gloomy about the prospect.
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Written by G. Willow Wilson (who wrote Alif the Unseen), the new Ms. Marvel series is the story of Kamala Khan, a Pakistani-American girl from Jersey city who dreams of becoming one of the Avengers. However, when she finds herself suddenly gifted with superpowers, this doesn't magically resolve her problems so much as create a whole load of new ones (such as how to sneak out and fight supervillains without waking her parents, and how to make a superhero costume that is comfortable, practical *and* modest). Ms. Marvel is smart and genre-savvy, and an interesting take on the experience of growing up as a second-generation immigrant as well as a superhero story.

***

I'm feeling a lot better today, so hopefully this will be my last day of flopping on the sofa reading comics and watching films (today's selection: Spirited Away, Castle in the Sky and She's the Man; yesterday I watched Hamilton and Tuesday was The Cat Returns). I intend to take tomorrow fairly easily but given that I am feeling almost back to normal I'd rather spend the day catching up with my email and getting on top of things a bit ready to start back properly next week than have that looming over the weekend. I can't say I feel entirely raring to go, but I'm not sure I ever would feel anything other than apprehensive about going back to work after a break.
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Lateral flow tests still negative. I also ordered a postal PCR test yesterday after I found myself wondering if my expensive Dorset Cereals muesli always tasted like sawdust and I'd never noticed it, but I'm not actually expecting it to come back positive.

I didn't get up until about 4pm yesterday, after spending most of the day dozing. At about 10am the postman rang the doorbell with a parcel of fabric, which T brought upstairs and put next to me on the bed, where it lay until about 1pm when I finally managed to summon the energy to open it.

Today when T brought another parcel of fabric upstairs I opened it straight away, and was able to get up at lunchtime and sit on the sofa without a quilt over me. I am taking this as a sign that things are moving in the direction, though I have a tightness around the chest which I didn't have yesterday.

I'm not sure whether I should try to work from home tomorrow or take another day off. At the moment doing almost anything at all seems to leave me feeling wiped out, so maybe I should take another day even if that feels like indulgence rather than risk tiring myself out by trying to work?
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I spent most of yesterday in bed, much of it feeling too exhausted even to sit up and read a book.

Today I managed to get up and put clothes on, and then flopped on the sofa under a blanket and watched The Emperor's New Groove followed by Kiki's Delivery Service and then put the 2020 Emma* on in the background and read Sandman.

I've been doing daily lateral flow tests which keep coming out negative, but even for January this really isn't normal. I suppose it could be actual burnout, though covid still seems more likely...

*which is the last film I saw in the cinema, at the end of February 2020

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